Jan
12
2009

Surgery Day - bi-directional Glenn - 12:30 PM

12:30

Can I just say again how happy i am this second surgery is over and we are now into recovery!  She is pretty flush and swollen both of which will change over time.  They did not paralyze her this time because they closed the chest before they came up to the PICU so she is twitching.  The are actively managing the pain with all sorts of things that would make a drug addict jealous.  The tubes are identical to the first surgery.  We have the ventilator, feeding tube, arterial line on the right side of her neck, EKG leads, plural catheter both left and right, and a suction drain sharing an hole with a plural catheter and another one at the bottom of the chest incision.  To top it all off she has a ureter catheter, blood pressure cuff on her right ankle, and an oxygen saturation monitor on her right foot.

 

Right now they are dialing in the medications so that her blood pressure is between 65 and 90 and the CVP is 12.  Her pulse is 144, oxygen saturation is 79%, Respiration is 28.  She is doing really well, and her little body is doing everything that is to be expected.  I still cant believe all the tubes and wires and machines.  It truly is amazing to watch the concert of everything working together to keep Lilee alive.  Isn't life a precious thing - I know it is and I am extremely blessed that other peoples knowledge and skill have given life to my beautiful daughter.  I will forever be thankful!

Comments (4) -

Dear Larry and Afton:
Thank you for sharing all the wonderful news and pictures about Lilee's condition. We are so happy that everything went well today. God is indeed good and worthy to be praised, as I know you all do! I know you have a long road ahead, but I'm sure with your family's help, you'll do great! Keep us updated. Love to all, Roxanne

My thoughts are with you. I don't envy this road you have to follow with all the hospital stays, but also agree with how amazing God is and technology to do the things they can do to further life.  I can't wait to meet this little fighter! Your entry brought me to tears, thanks Larry for being so sweet about your beautiful children and reminding all of us how precious life really is, each and every day. Love you!

We are SO glad to hear that things went just as planned--what a blessing! Lilee is such a fighter--right along with her troop of guardian angels : )  Let us know if we can do anything for you or the kids.

Our prayers have been with you. We are so excited to see that Lilee is doing so well. Seeing her in all those tubes just brings tears to my eyes to think such a little body is going through all that, but on the other side, what joy we feel seeing the ability of medicine and capable doctors today. With their widom and the faith and prayers of loved ones, we have all truly seen a miracle! We hope is still going well now that she is home.
Love, Teranne

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.