Aug
22
2011

Surgery Day - Fontan - 8:30 PM

Monday August 22, 8:30 PM

At about 8:15 PM they removed the respirator.  Afton was able to come back in to the PICU right before they started.  She had not seen them do this before so I was happy she made it.  Lilee's first words after some dry breathing and some rough coughing was "I don't like it". 

One giant tube removed and a dozen more to go!  For now though breathing on her own is definitely a big step.  Back to sleep for her and more waiting for us.

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.