Mar
11
2009

PEG Tube is so pase' - We upgraded to a MIC-KEY!

Wednesday March 11, 8:30 PM

Just like training earrings our first PEG tube was replaced today.  So this morning we were at the hospital at 6 AM for surgery at 8 AM.  Just like in previous visits we managed to get through the paperwork nightmare rather easily and then we waited.  After a short while they did the basic pre-op stuff (weight, temp, oxygen saturation) and then we waited some more.  Pretty close to 8:00 they took us to the basement of the hospital where we met up with the Anesthesiologist and the GI Doc. After some humorous banter and a quick run through of the operation/procedure the gas mask came out and without a whimper Lilee was asleep.  We were then asked to wait in a small room right outside of the procedure room.  As we left they were placing the IV - they were nice and decided to place the IV once she was asleep.  The procedure from start to finish took about 15 minutes.  Once it was over they moved Lilee to a recovery room and us to a different waiting room where we sat with other parents whose children had been operated on that same morning.  As Lelee began to wake up a nurse came in to get Afton so she could be there to feed her and provide overall comfort.  

A brief outline of what they did:

  • Put her to sleep
  • IV in the hand and some meds that will keep her to sleep
  • Endoscopy so they can see inside the stomach as they remove the old tube and place the new tube.
  • Remove the PEG tube
  • Insert the new MIC-KEY Low Profile Gastrostomy Feeding Tube
  • Clean up
  • Wake up
The new MIC-KEY

We actually got out of the hospital sooner than we had expected so we stopped to have a birthday lunch for Afton at a BBQ place by the hospital.  After lunch we headed home with a fully awake and happy baby.

 

Comments (11) -

What a great picture!  I'm glad all went well.  Thanks for the update.

Glad to hear she is doing great!! She is so cute Smile

My son, Warren, is 6 mo. old and also has HLHS. He had his second surgery in March at U of M. He still has an NG tube and , like you, we HATE it! He has gone from drinking half a bottle to drinking nothing. He teethes on the nipple but hardly drinks. We are fed up and haven't been able to find anything that has helped him wean from the tube. Have you had any success weaning from the G-tube?
I'm happy that your daughter is doing well Smile


for kelly king:
dont give it, before you know it your baby will do all his magic Smile

i have a baby with a g button (feeding tube) also she had hers installed when she was 1month 5 day, she was in the nicu for about 2 months
i personally did not like the idea of her getting one but it has
worked wonders, at least we know that she will get her nutrition no matter what.
i have bought all the nipples known to mom and the whole world you might want to
try the nuk nipple the older version those are the one she like the most,
first she would only take 15ml then 30 (1oz), and then she stopped all at once
but then out of no where she's now only bottle feeding its a whole month without the fedding tube.  if you would like to chit chat alittle more
you can email me maria_tile@yahoo.com
i hope this will be helpfull for anyone


ps* keep up the good work, you are blessed best wishes for your little one

Cousin Larry- Lilee is beautiful!! I'm glad all is going well. I love seeing updates of Lilee on here.

I absolutely love this picture of Lilee!!!!  Her smile is stunning.

My father is 88 years old and having a peg recently.  May we know, how the tubing of his peg be cleaned?  As we can see some residue on the tubing.

I think, that your child is very happy and wish him health and all the best.

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.