Sep
17
2008
Lilee Afton Foltz

9th Day Post Surgery - 11:25 AM

An article by larry 3 Comments

9th Day Post Surgery - 11:25 AM

Lilee has officially been transfered out of the PICU!  I came in this morning to hold Lilee before Afton got here and to get some alone time with my little girl. Well I didn't get my alone time.  They had just started feeding her as I walked in and after about 20 minutes they stopped the bottle feed and moved it to the feeding tube.  She ate about 20ml on her own so she is getting better. 

While they were preparing her to get transfered out of the PICU I held her and it was AWESOME.  She seems content and happy - until you move her and then she will wake up and give you a stink eye.  When it was time to move rooms they let me hold her as we walked down the hall.  All I could think of is how jealous Afton is going to be when she shows up.

Our new room is on the Peds floor and its not bad but not nearly as nice as the Peds ICU.  It looks like later today about 6:00 we will get our first roommate.  We are already going through Nurse withdrawals.  In the PICU we had our own and in there we have to share.  After we figure out the flow in our new room everything should be just fine.  Another bonus to getting moved out of the PICU is that we can have more than two people next to the bed at one time.  So a visit from the family will be a visit from the family and not individuals. 

We are thrilled with the progress Lilee is making and look forward to posting more today.  We might even get a possible discharge date today but again I might be getting a little ahead of my self.

Comments (3) -

Neldon and Bev Tueller United States
September 17, 2008 at 10:18 PM #

It has been a great effort on your part to keep us apprised of Lilee's progress.  We are so excited that she is making such great strides forward!  Hope the rest of the family is holding up under all of the stresses and strains.  We love you and only want the best of blessings for your family.  You are always in our prayers.
The Tuellers - Bev and Neldon

Robynne Boysen United States
September 17, 2008 at 10:43 PM #

I love hearing the progress Lilee is making!  It is especially wonderful to hear how her personality is emerging.  I second the Tuellers - I know how hard it must be to keep us all connected and I thank you for that effort.   I had the sweetest image in my mind because of the stink eye reference.  Content and happy - yep, no doubt about it, Lilee will fit in so well with the rest of you Foltz's!

Denice Nolan United States
September 18, 2008 at 12:35 PM #

Larry you are an incredible writer. I have felt every emotion, seen every expression and heard every word spoken as describe in these posts. Your children are absolutely darling. I feel so blessed to be even this very small part of the experience. Thank you so much for taking your time to share this incredible experience with all of us. Lilee is so lucky to be coming home to such a loving caring and awe-inspiring family. We are continuously thinking of you all and our prayers are with you all as well. Thank you again for not only sharing the experience but for sharing your entire family.
Denice

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.