Aug
24
2011

2nd Day Post Fontan Surgery - 7:00 AM

Wednesday August 24, 7:00 AM

I'm starting to get tired.  In fact I had snuggled into the reclining chair next to Lilees PICU and had dozed off at about midnight.  I was only asleep for 40 minutes or so when I heard someone calling my name.  When I realized it wasn't a dream and opened my eyes this is what I saw:

For the next 7 hours Lilee would wake up every 30 or 40 minutes, call my name to wake me up, wait for me to come to the crib, throw up in a bowl, allow me to clean her up and then lay back down and rest until she did it again.  I don't mind taking care of my daughter one bit but it did kind of tick me off a little that my PICU nurse who had one patient was not watching to see any of this happen all night long.  She would come in right after I had cleaned everything up.  We might as well have been on the regular Pediatric floor where the nurses have 3 to 4 patients.  In any case we made it through the night and today should be a good day as far as progress.

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.