Sep
29
2008

21th Day Post Surgery – 10:00 PM

21th Day Post Surgery – Monday September 29, 10:00 PM

Today was a busy day.  It started out having to move rooms early this morning.  Our roommate apparently has an infection in her lungs so the powers that be decided we should move to a less risky room.  So right before I started my precious hour and a half nap after the midnight feeding I had to pack up and move to the next room over.  I honestly didn't think we had amassed so much stuff but I guess bringing one thing every time you come adds up over time:)

At 6:00 AM they took Lilee to have her blood drawn - and they brought her back about 30 minutes later.  I don't go with them when they draw her blood because I think it makes the nurses nervous.  It seems to go much faster when I'm not there.  When the blood results came back we were visited by Dr. King (Cardiologist) and Dr. Iguidbashian (Surgeon).  They said the blood work looked great and they wanted to do an Echo of her chest to determine if the plural catheter was actually doing its job.  The past couple of days the fluid they have been removing has decreased but it has not hit the magic 10Ml in a 24 hour period for the removal of the catheter.  So they brought in their $200,000 piece of equipment and did their thing.  After they were done they said they didn't see any additional fluid buildup in the plural cavity and that the shunt they placed on the heart looked like it was doing what it was supposed to.  

Audiology came shortly after that and did a hearing test. They have been trying to do this for a week now but every time they show up Lilee begins baking little grunting noises that throw off their tests.  Once they leave she stops making the noises.  I think she knows whats going on and is doing it on purpose.  She doesn't do that for anyone else (thats my girl!).

Afton participated in a CPR class in the NICU today - I am supposed to take the same class but I don't know when I will be able to make it.  They don't offer it during my night shift.

A little spoiler for tomorrow - WE ARE GOING HOME!! 

Comments (1) -

Congratulations!  I am sitting here crying because I am so excited that you can bring Lilee home now!!!!! It is the most glorious news!

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.