Sep
30
2008
Lilee Afton Foltz

22nd Day Post Surgery – 1:20 PM

An article by larry 4 Comments

22nd Day Post Surgery – Monday September 30, 1:20 PM

Now today is going to be an exciting day.  I kind of spoiled it last night with my post but it looks like we are going home today!  One of the things we were waiting for was to see what the drainage from her plural catheter would be.  If it was lower than 10mL then they would remove it and let the body try and take care of it by its self but if we were over that limit we will do the aspirations at home.  Well the amount was 20mL so it looks like we go home with the supplies to do it ourselves.

Dr. King stopped by before his PICU rounds and said things were still looking good for a today departure. I am so excited I can hardly contain myself.  He gave us Lille's prescriptions and said Paula (one of our case managers) would be in shortly to help get supplies and a delivery schedule for our special formula and other necessary stuff so we can continue care from home. 

So now we sit and wait while the processes that get us out of here take their course.  Ill throw in a gratuitous picture of my red head little girl peaceful and sleeping.  More updates coming.

Comments (4) -

Cam and Josie United States
September 30, 2008 at 2:43 PM #

She is beautiful : ) And how exciting--she is coming home! That is great news!!!

Dan Boone United States
September 30, 2008 at 3:28 PM #

Dear Larry and Afton--You do have a beautiful little girl--and a red head--I am partial to redheads.  And am continually impressed and amazed at the stamina that this little girl's parents have---then I remember who the parents are, and it becomes clearer to me--the parents are born of good stock--I am familiar with the Grand Parents--I'm sure Larry made a wise decision when he chose Lilee's mother to be;  altho I don't know you, Afton, I am still proud of you.  May God continue His Blessing upon your family.  With love to all, Dan Boone

Emma United States
October 1, 2008 at 8:47 PM #

I cried when I read your spoiler.  I'm so glad she is coming home and that things are going so well.  I wish so badly I could be there to help somehow but I guess that feeling is pretty much mutual among all who know you (except your thief neighbor).  I hope you will all start getting more sleep and that things will continue to improve.  Remember to put Dad to work--he needs it.  Like the rest of us he wants to help in some way, somehow.  Good Luck with the visit and all that.  Tell Mom to give me a one-ringer and I'll call her at Erma's.  Love to you all!!

Emma

Roxanne Hubbard United States
October 2, 2008 at 5:35 AM #

Wow! What great news. I know you all must be relieved to be going home, even though it is temporarily to your folks. It's not a hospital, so things should feel a little more normal. Lilee looks so beautiful, wish we could be there to help. I'm sure it's reassuring to be going there - who else has  a doctor and a nurse as grandparents? You have a beautiful family and are blessed!

We love you all, don't forget that!
Kevin and Roxanne

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.