Sep
25
2008

17th Day Post Surgery – 9:00 AM

17th Day Post Surgery – Thursday September 25, 9:00 AM

Dr. King (Lilees Cardiologist) stopped by as planned a few minutes ago.  He noted that the fluid aspirated from her Plural Cavity seems to be decreasing but that could be because it is actually decreasing or it could be we are not getting it all.  We have an X-Ray scheduled for tomorrow morning so he said he would wait until then to find out.  Based on that X-Ray tomorrow we will be able to determine if we can take Lilee home or if she will stay and have the surgery to tie off the thoracic duct.

Our night feedings were pretty consistent at 15ml taken from the bottle and the remaining 50ml fed through the tube.  Early this morning she was taken down for blood work which came back stellar. Its the same story stable and healing with the small issue in the plural cavity and feeding.  It will sure be nice to get over this hurdle.

She is currently sleeping and looks very peaceful.  Its nice to see her completely relaxed.  I wonder what she feels like.  I wonder if she even realizes what she has been through and how amazing it is that she is here with me right now. I wonder if she is afforded a unique knowledge of her purpose here.  I wonder if while waiting to come and be with our little family she knew the body she would get would have problems.  In any case I sure do love her and I am happy that she is part of my family.

Comments (3) -

You did it again Larry. I'm crying. Lilee is so special and I can feel that about her through every post. I'm so happy she is healing well. I'll pray for her to overcome her complications. I hope you get to bring her home very soon. Thinking of you and your family often.

She's so beautiful!  Look at all that red fuzz!!! She looks great and we are so glad to hear that things are looking up.  We hope you get to bring your baby girl home soon.  Thanks for the updates.

Hi you guys ,Your baby is so beautiful, and we are glad things are going well.Hope to see you all soon your neighbors.

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.