Sep
22
2008
14th Day Post Surgery - Monday September 22, 9:30 AM
Today I feel like I have abandoned my family. I am currently attending a conference in Las Vegas and will be here until Tuesday night. I did take the night shift for the last couple nights so that Afton could rest up and be prepared for my absence but I still feel guilty. Afton has been keeping me up to date with text messages and has also been emailing pictures to me so I still feel like I am in the loop.
Afton has had more success in feeding than I had under my watch. I received two texts stating Lilee ate 25ml in two consecutive feedings. This is 10ml more than she was getting when I was feeding her - Incredible! We are still not there yet however we are looking for 60ml in one feeding.
An X-Ray this morning still shows that her lungs are "fluffy". So they want to watch that. I am not quite sure what fluffy lungs are but I will find out and re-post that information. They can also see a pocket of fluid which is the same pocket the nurses drain 35ml of fluid out of twice a day. We are hoping that goes away in the next couple days as we are already talking about options. I am going to spend some time today and find out what happens physically when the thoracic duct is surgically closed. That seems to be the option that we will end up with if we cant get it to stop.
One exciting thing that Lilee has been doing is smiling. Afton and I are aware that she is probably not doing it voluntarily and that its probably gas but its pretty neat to see.