Sep
18
2008
10th Day Post Surgery - 11:25 PM
I couldn't let a day go by where I didn't post some sort of update - so even though its pretty late here goes.
After making rounds this morning the doctors said the wound on Lilees chest is healing nicely. They are still going to change the bandages a couple times a day but just to be safe. Probably the most exciting part of today was the removal of the central line (The IV in her neck). With that gone we were able to put a little shirt on her. Probably not the most exciting news on the planet but that little shirt marks progress and when you are taking things one step at a time each little step is really a blessing and a miracle. They are still aspirating her plural cavity with the left side producing nothing and the right side about 50ml of gunk. I am told this should start decreasing soon. We just finished a feeding at she ate 5ml which is not very much and I fed the rest using the feeding tube. Hopefully the midnight feeding will be better.
Due to the craziness with the home construction and everything else going on today was messed up right from the get-go. I finally made it to the hospital at 7:00 to spare Afton. One of us gets to stay here in the room 24 hours a day. So we have decided to take turns at night. Last night was Afton and tonight is my turn. So for our change of shifts I brought the kids so they could hold Lilee for a few minutes each. They sure get excited to see her, its really kind of neat. Especially since she is not hooked up to pumps and tethers and the kids can really hold her.
I thought that some of the people reading this would be interested in what our little experience costs. So I am going go create a page called "What does it cost" that I will update as I receive a bill. We are extremely lucky that we have insurance and that some of our "experience" is going to be covered. I am trying to figure out a way to display the information so it is readable. My initial attempt has not produced results that accomplish that so I will try again later tonight.
Well I have been looking forward to my alone time with Lilee all day and its almost feeding time so I'm going to go hold her for a bit. How cool is it that my kids are able to hold her now though, here are some pics: